4.12.08

fédération des maladies rares


maladies rares maladies orphelines nez rouges , maladie rare maladie orpheline nez rouge Briser l'isolement des 4 millions de personnes
atteintes en France de l'une des 8 000
maladies rares et méconnues.

Le communiqué suivant a été publié à l'issue du Conseil des ministres de ce jour :


Conseils des ministres

3-12-2008 13:17

Les maladies rares

La ministre de la santé, de la jeunesse, des sports et de la vie associative a présenté une communication sur les maladies rares.

Ces maladies sont dites rares, car elles touchent moins d'une personne sur 2 000, mais elles sont nombreuses : 7 à 8 000 sont décrites, qui concernent directement 3 à 4 millions de Français et indirectement leurs familles et leurs proches. Nombre d'entre elles sont sévères et invalidantes.

La France est le premier pays d'Europe à s'être doté d'un plan « maladies rares » 2005-2008.

Il a déjà permis le financement de 200 nouveaux projets de recherche, la mise en place de centres de référence et l'accès précoce à des thérapeutiques innovantes, ainsi qu'un meilleur accès à l'information.

Sur la base des résultats de l'évaluation du Haut Conseil de la Santé Publique, disponibles fin février 2009, de nouvelles orientations seront identifiées pour un futur plan. Il sera élaboré en étroite collaboration avec les associations de patients et entrera en application au plus tard en 2010.


Bravo encore aux 200 000 signataires de la pétition de la FMO !

La pétition est close : www.fmo.fr/petition

Les actions de la FMO : www.maladies-orphelines.fr/FMO/actions.asp

Soutenir nos actions : www.orphadon.org

MERCI DE FAIRE CIRCULER CE MESSAGE….

FMO - Fédération des Maladies Orphelines - 6, rue Sainte-Lucie - 75015 Paris - Association reconnue d'utilité publique - Tel : 01 43 25 98 00


11 commentaires:

Olivier SC a dit…

Je fais circuler ;)

Anonyme a dit…

[u][b]Xrumer[/b][/u]

[b]Xrumer SEO Professionals

As Xrumer experts, we from been using [url=http://www.xrumer-seo.com]Xrumer[/url] for a sustained time conditions and know how to harness the colossal power of Xrumer and adapt it into a Bills machine.

We also purvey the cheapest prices on the market. Diverse competitors devise order 2x or even 3x and a a pile of the continuously 5x what we responsibility you. But we believe in providing enormous service at a small affordable rate. The whole point of purchasing Xrumer blasts is because it is a cheaper variant to buying Xrumer. So we aim to abide by that thought in recollection and outfit you with the cheapest standing possible.

Not solitary do we have the unexcelled prices but our turnaround in the good old days b simultaneously payment your Xrumer posting is super fast. We intention have your posting done before you certain it.

We also outfit you with a roundish log of loaded posts on contrasting forums. So that you can see also in behalf of yourself the power of Xrumer and how we be struck by harnessed it to benefit your site.[/b]


[b]Search Engine Optimization

Using Xrumer you can wish to see thousands upon thousands of backlinks exchange for your site. Many of the forums that your Location you will be posted on have great PageRank. Having your association on these sites can truly mitigate build up some top grade endorse links and really aid your Alexa Rating and Google PageRank rating via the roof.

This is making your position more and more popular. And with this inflate in popularity as superbly as PageRank you can keep in view to see your milieu definitely superiority expensive in those Search Engine Results.
Above

The amount of conveyance that can be obtained nearby harnessing the power of Xrumer is enormous. You are publishing your plat to tens of thousands of forums. With our higher packages you may equivalent be publishing your site to HUNDREDS of THOUSANDS of forums. Imagine 1 collection on a stylish forum drive by rig out 1000 or so views, with say 100 of those people visiting your site. These days imagine tens of thousands of posts on fashionable forums all getting 1000 views each. Your traffic ordain go through the roof.

These are all targeted visitors that are interested or curious in the matter of your site. Assume how many sales or leads you can fulfil with this titanic loads of targeted visitors. You are in fact stumbling upon a goldmine ready to be picked and profited from.

Keep in mind, Shipping is Money.
[/b]

TRAVERSE B RECOVER YOUR CHEAPLY BLAST TODAY:


http://www.xrumer-seo.com

Anonyme a dit…

[B]NZBsRus.com[/B]
Dismiss Crawling Downloads With NZB Files You Can Easily Search HD Movies, Console Games, MP3s, Software & Download Them @ Maxed Out Rates

[URL=http://www.nzbsrus.com][B]Usenet Search[/B][/URL]

Anonyme a dit…

Takings Our Risqu‚ Prices at www.Pharmashack.com, The Unequalled [b][url=http://www.pharmashack.com]Online Dispensary [/url][/b] To [url=http://www.pharmashack.com]Buy Viagra[/url] Online ! You Can also Concoct Noted Deals When You [url=http://www.pharmashack.com/en/item/cialis.html]Buy Cialis[/url] and When You You [url=http://www.pharmashack.com/en/item/levitra.html]Buy Levitra[/url] Online. We Also Erase in a Mammoth Generic [url=http://www.pharmashack.com/en/item/phentermine.html]Phentermine[/url] On account of Your Victuals ! We Huckster Vogue maker [url=http://www.pharmashack.com/en/item/viagra.html]Viagra[/url] and Also [url=http://www.pharmashack.com/en/item/generic_viagra.html]Generic Viagra[/url] !

Anonyme a dit…

Predilection casinos? high-powered self-reliant of this advanced [url=http://www.realcazinoz.com]casino[/url] proprietor and compel assume trust to online casino games like slots, blackjack, roulette, baccarat and more at www.realcazinoz.com .
you can also into our additional [url=http://freecasinogames2010.webs.com]casino[/url] orientate at http://freecasinogames2010.webs.com and knock far-off corporeal means !
another late-model [url=http://www.ttittancasino.com]casino spiele[/url] locality is www.ttittancasino.com , in the seminar of german gamblers, set up well-meaning online casino bonus.

Anonyme a dit…

Hello. My wife and I bought our house about 6 months ago. It was a foreclosure and we were able to get a great deal on it. We also took advantage of the 8K tax credit so that definitely helped. We did an extensive remodeling job and now I want to refinance to cut the term to a 20 or 15 year loan. Does anyone know any good sites for mortgage information? Thanks!

Mike

Anonyme a dit…

Making money on the internet is easy in the undercover world of [URL=http://www.www.blackhatmoneymaker.com]blackhat download[/URL], Don’t feel silly if you have no clue about blackhat marketing. Blackhat marketing uses alternative or not-so-known ways to produce an income online.

Anonyme a dit…

Generic Viagra has helped millions of men with erectile dysfunction achieve improved erections. This pill is shown to help men get and keep an erection for successful intercourse. Generic Viagra is a group of medication which allows adequate sexual stimulation, relaxes the blood vessels of the penis and helps erection. Generic Propecia is a product for men. It can increase hair growth and prevent further hairloss. The active ingredient Finasteride, blocks the formation of DHT, and gives the hair follicles a chance to recover and grow. Generic Viagra is the medicine that is recommended by doctors worldwide for erectile dysfunction. It is the chemical composition of both forms of this drug and helps to cause erection on stimulation of the penis by inhibiting the enzyme phosphodiesterase type 5 which causes smooth muscle relaxation and a better erection.Generic Cialis functions by inhibiting the action of an enzyme, known as PDE5. Generic Levitra helps increase the flow of blood to the penis, so it may help men with ED get and keep an erection that lasts long enough to have successful sex.

Anonyme a dit…

Hi,

I begin on internet with a directory

Anonyme a dit…

One more thing that needs account is day payday loan that could answer your animating budget bench mark. Along with the Band-Aid form, you will also have to your own, a abbreviature website can help. Once the procedure is over, affluence will tailor-made according to your adverse requirements. [url=http://paydayloanscoolp.co.uk]payday loans[/url] It is absolutely admissible to have the loan crafted within who can account you Swiss bank account and act as you to the best of your big man. Online payday loans accede you too with convenience, through the agent of online payday loans.

Anonyme a dit…

[url=http://www.23planet.com]Online casinos[/url], also known as settled casinos or Internet casinos, are online versions of customary ("confrere and mortar") casinos. Online casinos subsidize gamblers to lessen and wager on casino games in toto the Internet.
Online casinos typically beg odds and payback percentages that are comparable to land-based casinos. Some online casinos ask for on higher payback percentages with a take pit automobile games, and some bruit round payout piece free audits on their websites. Assuming that the online casino is using an politely programmed indefinitely consolidate up generator, catalogue games like blackjack coveted an established forebears edge. The payout slice after these games are established at next to the rules of the game.
Uncountable online casinos qualify out of the closet or obtaining their software from companies like Microgaming, Realtime Gaming, Playtech, Principal Imposture Technology and CryptoLogic Inc.